♥️Understanding Vascular Ehlers-Danlos Syndrome (VEDS) for VEDS Awareness Month. ⭐VEDS is a rare genetic disorder that affects the blood vessels and organs. It's caused by a mutation in the COL3A1 gene, which codes for type III collagen. This protein is essential for maintaining the structure and integrity of blood vessels. *Key Facts:* - VEDS can cause blood vessels to rupture, leading to life-threatening complications. - Symptoms may include easy bruising, fainting, and gastrointestinal issues
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♥️Understanding Vascular Ehlers-Danlos Syndrome (VEDS) for VED…
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FacebookAortic Hope
What is it like to live with vascular Ehlers-Danlos syndrome (vEDS)? This awareness video highlights some of the experiences of the community living with vEDS, the impact on their families, the importance of education and research, and hopes for the future. #REDS4VEDS | The Ehlers-Danlos Society
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What is it like to live with vascular Ehlers-Danlos syndrome (vEDS)? …
8.6K viewsMay 17, 2023
FacebookThe Ehlers-Danlos Society
Vascular Ehlers-Danlos syndrome (vEDS) is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be life-threatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax. President of The Ehlers-Danlos Society, Lara Bloom, speaks with Dr. Sherene Shalhub in the USA, and D
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FacebookThe Ehlers-Danlos Society
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What does it mean to live with vascular Ehlers-Danlos syndrome (vEDS)? #invisibledisabilitiesweek #invisibleillness #vEDS #Vascular #VascularEDS #VascularEhlersDanlosSyndrome #HealthcareProfessionals | The Ehlers-Danlos Society
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What does it mean to live with vascular Ehlers-Danlos syndrome …
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FacebookThe Ehlers-Danlos Society
Vascular Ehlers-Danlos syndrome (vEDS) is a heritable connective tissue disorder that makes the connective tissue very fragile, particularly in the blood vessels and hollow organs. vEDS can cause life-threatening complications, such as aneurysm, dissection, and rupture of the arteries and rupture of organs, mainly the bowel. Genetic testing is used to see if a person has a genetic variant that causes vEDS. Genetic testing should be considered if a person has any of the major criteria or several
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FacebookThe Ehlers-Danlos Society
Vascular Ehlers-Danlos Syndrome (vEDS) & Genetic Testing Presented by Dr. David Saperstein. 𝐯𝐄𝐃𝐒 (𝐕𝐚𝐬𝐜𝐮𝐥𝐚𝐫 𝐄𝐡𝐥𝐞𝐫𝐬-𝐃𝐚𝐧𝐥𝐨𝐬 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞) is an uncommon, dominantly inherited, genetic connective tissue disorder. vEDS is rare and patients usually have a very characteristic appearance to their face and skin (skin is very translucent and veins are very prominent). Vascular Type EDS is considered the most serious form of EDS due to the possibility of arterial or organ ruptur
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