As always I’m late to a party but today is national disease day. I’ve never jumped on this bandwagon because the word “disease” sounds contagious and we aren’t in that category. However, I will always take the opportunity to raise awareness for cranial syndromes. I’ve given the definition of pfeiffer syndrome plenty of times so instead I just want to say.... Here is a rare genetic mutation. She is beautiful. She is rare. She is loved. She is smart. She is capable. She doesn’t let her brother get
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FacebookBeth's Journey
As always I’m late to a party but today is national disease day. I’ve never jumped on this bandwagon because the word “disease” sounds contagious and we aren’t in that category.
Beth's Journey. . As always I’m late to a party but today is national disease day. I’ve never jumped on this bandwagon because the word “disease” sounds contagious and we aren’t in that category. However, I will always take the opportunity to raise awareness for cranial syndromes. I’ve given the definition of pfeiffer syndrome ...
63.8K viewsMar 1, 2019
Pfeiffer Syndrome Explained
🧠 Guillain-Barré Syndrome (GBS) Explained A rare autoimmune disorder where your immune system attacks your nerves ⚡ 👉 Symptoms: weakness, tingling, paralysis, breathing difficulty 👉 Early diagnosis & treatment = better recovery 💪 @pulsecheck_md #GuillainBarreSyndrome #GBS #AutoimmuneDisorder #Neurology #MedicalAwareness #HealthEducation #RareDiseases #MedicalReels #StayAware #SpreadAwareness | pulsecheck MD
🧠 Guillain-Barré Syndrome (GBS) Explained A rare autoimmune disorder where your immune system attacks your nerves ⚡ 👉 Symptoms: weakness, tingling, paralysis, breathing difficulty 👉 Early diagnosis & treatment = better recovery 💪 @pulsecheck_md #GuillainBarreSyndrome #GBS #AutoimmuneDisorder #Neurology #MedicalAwareness #HealthEducation #RareDiseases #MedicalReels #StayAware #SpreadAwareness | pulsecheck MD
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‘Humor, sometimes dark, sustained us. As Kristy often says, ‘Laugh or cry. Right?’: Dad details navigating daughter’s Pfieffer Syndrome, other medical diagnoses, ‘No condition defines her’
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20K views · 386 reactions | Why Other Kids Won't Play With Him "It just breaks my heart as his mom because he's just a little boy, you know? Like, he wants to play." Raedyn has Pfeiffer syndrome, a rare condition that affected the way his bones developed. His mom, Natasha, shows us what a normal day looks like for him and tells us about the discrimination they've faced from other parents when Raedyn tries to play with their kids. | seen.tv | Facebook
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