I felt sad about leaving Todd at home, but travel is not enjoyable nor practical for him at this stage of his ALS progression. I needed a break from the demands of being on duty as his caregiver, but ...
The ALS Association is now throwing its full weight behind the newly reintroduced ACT for ALS Reauthorization Act ( H.R. 8205 ), a bipartisan push to ensure that life-extending programs for people ...
Shionogi acquired global rights to Radicava (edaravone) for ALS from Tanabe Pharma. Radicava treats ALS by neutralizing toxic oxygen molecules to slow progression. Shionogi commits to ensuring ...
New rare genetic variants are linked to ALS, expanding understanding of genetic contributors. About a quarter of ALS cases have an identifiable genetic contributor. Findings support broader use of ...
ALS patients and caregivers prefer care models where multiple specialists are seen during the same visit. They prioritize team-based care and ALS expertise over factors like visit length or cost.
One ALS patient received TRE-515 under the FDA program last year, and early signs suggest the therapy may help stabilize ...
Every new piece of equipment carries a little bit of hope, but it’s often a lot of work to adapt to it. What works for one person doesn’t necessarily work well for another, so it takes trial and error ...
A new gene therapy, Celosia's CTx1000, is now being tested for ALS in a small clinical trial in Australia. The one-time treatment targets toxic TDP-43 protein clumps, a key driver of most cases of ALS ...
Book offers new way to share ALS experiences through letters “While many people impacted by ALS have courageously shared ...
The U.S.-based nonprofit announced Eby as this year’s award winner, recognizing her wide-ranging advocacy efforts, which include raising more than $1 million for ALS research an ...
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